[As a person with congenital nystagmus, and especially given my interest in presence, I’ve looked for ways to effectively describe the way I see the world, or much better, provide them with a simulated version of my experience. The two stories below report on a new use of virtual reality that can provide the latter – the BBC News story focuses on the benefits of the simulation (see the original version for more pictures) and the one from Belfast LIVE that follows it provides more details about the VR software and how it was developed. –Matthew]
[Image: Caroline Henderson now has a better understanding of her daughter Aibhilin’s life]
Vision loss headset made in Belfast opens window on child’s world
By Sara Neill, BBC News NI business reporter
June 6, 2023
A woman who used virtual reality to understand her child’s visual impairment says seeing the world through her daughter’s eyes is “mind blowing”.
Caroline Henderson’s daughter Aibhilin, seven, was diagnosed with ocular albinism and nystagmus at 11 weeks old.
When Caroline and her husband Carl used a VR headset developed in Belfast, they found it “overwhelming”.
It showed them just how frustrating her visual impairment was for Aibhilin.
“It was very overwhelming and it made us realise just how frustrating and how her world is very different to the way her dad and I see the world,” says Caroline.
“It made perfect sense why the playground and classroom can be really frustrating and she doesn’t read non-verbal social cues.”
The software was developed in Belfast by Sara McCracken, whose twins were born at 29 weeks and registered blind at just six months.
Peter and Connie have oculocutaneous albinism and nystagmus, which means their eyes move involuntarily from side to side and they have reduced vision.
Ms McCracken wanted the wider world to understand how people with visual impairments, like her twins, see every day.
The system recreates more than 30 eye conditions in a variety of settings such as a school classroom, a busy street, bus or play park.
The team involved include experts from the Royal Victoria Hospital in Belfast and Ulster University.
“We’ve developed software that can be manipulated to create lots of different eye conditions,” says Ms McCracken.
“It’s a very effective way of giving people who don’t have clinical information or knowledge a really immersive impression of visual impairment.
“It’s very effective for parents to be able to understand and change the way they advocate for their child but also for schools to understand the impact it has on children in the classroom or playground and, beyond that, for adults who have a visual impairment too.”
For Caroline, the Empatheyes software has made her more understanding of Aibhilin’s behaviour.
She says children with visual impairments often get very tired by the end of the week, their vision has deteriorated, and the way they are parented or taught needs to be adapted.
“I think sometimes the children with visual impairment, you’re seeing the tip of the iceberg and not understanding what’s underneath and driving that behaviour,” she explains.
“Thursdays and Fridays are Aibhilin’s most challenging days at school.
“But now, understanding her nystagmus and the way that she sees the world, and she’s tired because she’s held it together all week.
“I think without doing the VR technology we wouldn’t understand the difference between the Aibhilin we have on a Monday and the Aibhilin we have on a Friday.”
Empatheyes works as a social enterprise. Its team is based at the Innovation Factory in west Belfast.
Its software is being used in schools, healthcare settings and offices across the UK and Ireland.
Next month it will be shown to an international audience at the Vision 2023 conference in Denver.
“The United States is a massive market and they don’t have anything like it there,” says Ms McCracken.
“There’s a lot of excitement already from professionals over there to see this VR system that we created right here in Northern Ireland.”
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[From Belfast LIVE]
[Image: Sara McCracken, from social enterprise Empatheyes, demonstrates the new VR visual impairment simulator to Stephen Ellis, Innovation Manager at Innovation Factory. Credit: Brendan Gallagher]
Mum of visually impaired twins designs VR simulator to show life through their eyes
The unique system will be showcased in the United States at a major international conference in July.
By James Martin McCarthy
June 1, 2023
A mother of 17-year-old twins who have a rare genetic condition, diagnosed when they were babies, which impacts their sight has designed new ‘virtual reality’ software to let parents see life through their children’s eyes.
Sara McCracken formed social enterprise Empatheyes at Innovation Factory in West Belfast to produce a unique new system combining state of the art software with the latest virtual reality technology to replicate an individual’s exact visual impairment.
The idea and passion came about when Sara, CEO and founder of charity Angel Eyes NI, which supports blind and partially sighted children, began searching for a product that would let parents understand how their children see the world to help them advocate on behalf of their children and secure the right services.
“I wanted something that could instantly demonstrate how an individual child sees the world to people who don’t have a clinical background,” she said.
“There are so many differences in what a visually impaired person can see and it’s very difficult for a sighted person to comprehend.
“Initially I assumed there would be a digital product out there that would do that but I searched for such a long time and there was nothing.”
Sara wanted to create a unique system, which provides 360-degree immersion with built-in eye tracking that can be specifically calibrated to recreate more than 30 eye conditions in a variety of settings such as a school classroom, a busy street, bus or play park.
She set about putting a team together to develop the product, including clinical lead Professor Jonathan Jackson, head of optometry at the Royal Victoria Hospital and technology lead Dr Alec Kingsnorth, an optometry expert and software developer who has worked at Aston University in Birmingham.
Ulster University’s Professor of Optometry and Vision Science Kathryn Saunders has also joined the social enterprise as clinical lead trainer.
“By simply putting this headset on, we can demonstrate to parents, carers, teachers and others how the world looks to each visually impaired person so they can fully understand how to make the best adaptations,” Sara added.
After trialling the product with professionals and carers, it was successfully launched in the UK and Ireland in 2022.
Empatheyes, which recently won a Tech for Good award from Digital DNA, will now be unveiled to an international audience at Vision 2023, a major conference in Denver that brings together professionals and researchers from around the world to share ideas and learn from each other to improve the lives of people with visual impairment or blindness.
“The United States is a massive market and they don’t have anything like it there,” Sara continued.
“There’s a lot of excitement already from professionals over there to see this VR system that we created right here in Northern Ireland.
“The use of VR is so powerful that it can have a transformative effect on people as they finally understand how a visually impaired person sees the world.”
One mum, Caroline Henderson, whose daughter Aibhilin is visually impaired, spoke of her reaction when she and her husband Carl were able to use Empatheyes.
“It’s an amazing experience to put on a headset and see the world in the way that Aibhilin experiences it,” she said.
“The VR technology is so powerful and helpful for both parents and professionals. My husband Carl was very moved by the experience and it changed his perspective and parenting techniques. It gave me more confidence to advocate on Aibhilin’s behalf.”
The profits of the social enterprise Empatheyes will help to fund the services of Angel Eyes NI to support families and children with a vision impairment.
The organisation now is located at Innovation Factory and has been supported by the team there.
“We chose to open an office at Innovation Factory because we liked their ethos to support the local community and engage with young people. The team at IF also helped us network, make new contacts and source funding opportunities that really took us to the next level,” Sara said.
Innovation Factory is owned by Belfast City Council and operated on its behalf by Oxford Innovation Space. The £9.1m business hub was funded by Belfast City Council and Invest NI with support from the European Regional Development Fund.
Stephen Ellis, Innovation Manager at Innovation Factory, explained that the team at the centre were keen to support new businesses by offering support and advice.
“It’s been really exciting to see how this organisation has grown since they moved into the centre in 2020.
“They are highly focused and are determined to help visually impaired children and their families. Their entry into the US market brings cutting edge technology developed in Belfast onto the world stage,” he said.